May 8 / Douglas Crowther

The Person Isn’t the Problem: Why Neurodivergent First Aid™ is a Social Intervention, Not a Medical Response.

When we think about people’s psychology, there is one particular understanding that is our go-to: the view that our feelings and decisions are the products of our thoughts and thinking. Unfortunately, this thinking-deciding-acting model of psychology, although familiar, dramatically limits our ability to help ourselves and those around us, especially neurodivergent people. Note: when I use the term 'First Aid' here, I am not referring to a medical response; I am referring to a non-clinical framework for crisis support and environmental design to understand and support, primarily, neurodivergent people. Let me explain.

Imagine Finn, a 9-year-old neurodivergent boy in a classroom in suburban Australia. Outside the classroom, the magpies are singing and the wind moves gently through the leaves of the eucalypts shading the perimeter of the school grounds. Finn doesn’t notice any of this. He is restless in his classroom and hasn’t taken his hoodie or hat off despite repeated requests from his teacher.

His teacher, in an effort to make sense of Finn’s behaviour, defaults to the standard way we tend to think about our psychology. She understands Finn’s behaviour as words going on inside his head that lead him to decisions. That is, Finn is thinking - or using words and forming beliefs - and then acting on these beliefs. When he does something that is outside of what is hoped for or expected, then he is essentially choosing to think and believe things that lead to “wrong” actions. He is, for example, “refusing to settle” and engaging in “challenging behaviour”, likely due to him holding beliefs about himself or school that lead to “significant anxiety”.

Familiar Problem, New Understanding
But inside Finn’s body, a different story is unfolding. Today, the fluorescent lights aren’t just bright; they feel like a physical weight on his eyeballs that runs all the way down into his chest and arms and fingers. His skin writhes dully, and the tag on the back of his shirt is sharp and abrasive against his spine. He has been sitting for so long that his muscles feel tight and restless and yet his thoughts come to him through a hazy soup.

This is where the default understanding of psychology pushes us down a dead-end that just leads to frustration and hurt. It leads us to think of Finn and his next moves in terms of agency and logic and decision-making. But in reality, Finn isn’t making decisions any more than you are in the moment when you catch your finger in a kitchen drawer.

The Truth in the Kitchen Drawer
As the drawer edge closes unexpectedly on your finger tip, your entire perception suddenly narrows. You are consumed by pain and confusion and can’t quite make sense of the situation. You respond immediately to free your compressed digit. In that moment, possibilities for courtesy, consideration for others and moderation in words and action all flee from you. You hurl the drawer open to relieve your finger and, at the very least, impolite gasps or choice words escape your lips. Like many, you may even hit or slap the drawer or bench in pointless retribution for the hurt it just caused you.

Finn’s predicament may not appear to come on quite as suddenly or obviously as the drawer that crushed your finger, but his brain and body are very much in the same space as yours were in that moment. To attribute his next actions to agency, logic and decision is just as ludicrous for Finn as it would have been for you.

Even though you can’t see it, Finn’s brain and body are extremely escalated. The prolonged sitting, proximity to his peers, social expectation to answer teacher-questions out loud, the smell of Tom sitting next to him and the bright lighting all combine to force his brain and body into a state of threat. When a classmate, Sally, leans in and asks Finn to move so she can reach the coloured pencils, it is the final straw. Finn screams, throws a chair, and runs blindly out of the classroom. To his teacher, who has been taught to see these behaviours in terms of thinking-deciding-acting, this may look like “aggression”, “non-compliance” or possibly even “manipulation”. For Finn, it is likely just confusion - the same confusion you felt in the moment when your finger suddenly screamed with pain and you couldn’t work out why.

The standard model of psychology suggests that we must manage the behaviour by changing Finn’s thoughts and thinking to de-escalate him. As thinking is assumed to be in words, so too, the logic goes, we should use words to help Finn make a “good choice” or decision. But words haven’t led to this problem. And neither, for that matter, has thinking. Unfortunately, at this point, standard and familiar psychology has more or less run its course. But rather than give up, it tends to double-down with further insistence that Finn simply must have made some poor decisions somewhere. If none of this works, this model then tends to insist on rules, consequences and rewards to instill the right ways of thinking in Finn. Afterall, this model insists, Finn just needs to examine his thoughts, challenge them and make better decisions. He needs to calmly and logically work his way through the problem to arrive at a better decision.

But did you ever stop and ask: in the moment when you jammed your finger in the kitchen drawer, did you think and make a decision? I don’t believe you did. At most, you made a decision from a very limited number of possibilities that were available to you in that brief moment - and none of those included particularly elegant or courteous options. You acted within the constraints of what you could perceive. You didn’t think or decide. You simply perceived and acted. Any “decision” you made was from a very small number of possibilities or affordances immediately perceivable to you: push, pull, cry out in pain, step back. It seems quite ridiculous to allege that some form of considered decision making has gone on here or was even possible - it simply hasn’t and it wasn’t. Put differently, in seeking to understand neurodivergent people in crisis, we aren't looking for non-compliance; we are looking for environmental friction.

A quick side note: it is tempting to call this movement away from pain and danger “instinct”. But “instinct” is just a lazy catch-all where the standard psychological model puts lots of behaviours that it really just doesn’t or can’t make sense of. So-called “instinct” is a black box where think-decide-act psychology can put all these complex behaviours, close the lid and pretend it’s given a valid explanation for them.
A New Ecological and Embodied Approach
However, never fear! This is where an ecological and embodied perspective opens up some new possibilities for understanding. If we accept that the mind and the body perceive and respond in the moment without recourse to “decision” as it is commonly understood, we have an entirely new way to explain what is happening for Finn: he wasn't "behaving badly." Rather, his brain, body and nervous system were escalated because the environment—the noise, the lights, the physical restriction, and the social demand—had become biologically unsustainable. He didn't need "discipline"; he needed an environment that offered safety instead of threat. His “explosion”, like yours when you jammed your finger, was all he could perceive and act on at the time. Like your inelegant and discourteous actions to remove your jammed finger from a drawer, Finn’s action also reduced his sense of threat and harm and was the only possibility he could perceive and act on in that moment.

What’s more, we can move away from the fruitless endeavour of trying to understand Finn in terms of what he was thinking and deciding when he exploded or just before and can instead turn to exploring how environments impact people’s ability to perceive and act in the world. It turns out, this is a fairly predictable phenomenon.

Environmental Escalation: Safety Vs Threat
Environments that are subjectively high in social, emotional and sensory demands, tend to increase escalation and subsequently decrease people’s ability to perceive and act on possibilities or affordances in the world. Put differently: when we are facing situations where our bodies are in sensory comfort and we can manage the social and emotional demands placed on us, we can also perceive and act in more ways in the world, including in more ways that do not lead to harm to ourselves, others or relationships. Unfortunately, the converse is also true: when our bodies are in sensory discomfort or we are too thinly stretched emotionally or socially, our brains and bodies escalate and we can perceive and act on far fewer affordances in the world. This is true for everyone, though the effect is amplified for neurodivergent people.

Thankfully, with even this rudimentary understanding, we can begin to audit the environments Finn may find himself in and work out both what might realistically lead to escalation, meltdown and shutdown. We can also work out how we can avoid or minimise the chance of this in the future.

The Three-Part Environmental Audit
A simple audit considers three things: the sensory emotional and social content of a given environment. This is part of predicting and managing in advance.

1. Sensory Demands
Let’s start with the sensory. Everyone has sensory differences. However, neurodivergent people tend to have more extreme sensory differences than most other people. These sensory differences are across all eight senses (yes: eight) and tend to be either hyper- or hypo-sensitive or both.

Bear in mind that this isn’t the same as a fire safety audit. You can’t apply the approach of standing at one end of a room with a clipboard and tape measure and ticking off whether or not the signage and distance between the fire extinguishers and the doorway meets specification. Auditing an environment for Finn must be done in collaboration with Finn and, most likely, a parent or similar person who knows him well. It will take time, care, attention and consultation. Most importantly, it will require you to establish a relationship of trust with Finn. Without this, you simply won’t be able to gain the necessary insights you need to support Finn.

This is because Finn’s sensory differences will be known in their most complete form only to him. You will need to consult with him to work out what about a particular environment may escalate his brain, senses and body. Nonetheless, some features may stand out - the lighting, sounds from overhead fans, echo and reverberation through a room, tactile feels of the seating, the temperature of the room and similar. You may ask Finn to consider how the room will change when, for example, 50 people are dancing to music in it or a cooking class is being conducted, if that is what is being considered. It can help to show photos, YouTube videos or give detailed descriptions to better illustrate this and help Finn place himself in it. All of these factors impact upon how Finn’s sensory system and body experiences the room. It should also go without saying that this conversation needs to take place when Finn is calm and with careful attention to any escalation throughout it.

2. Social and Systemic Demands
To further predict and manage neurodivergent escalation in advance, an audit can also be used to identify the social demands of an environment. Again, in concert with Finn, you can work with him to establish what he may experience as challenging or too high demand to cope with. This can be done by illustrating with examples the types of likely social interactions that may take place. Consider whether there may or may not be acceptance from others in the environment of deviation from expected behaviours.

Some environments such as Neurodivergent-affirming social gatherings are highly accepting of individuals not adhering to particular social norms. Other environments, such as court rooms or job interviews, are typically far less accepting of deviation from expected behaviour. Working collaboratively with Finn, you can audit an environment based on past, shared and expected experience to determine if Finn is likely to be escalated or able to cope. Again, illustrate this for Finn by telling stories, sharing experiences and reflecting on any relevant or similar experiences he may have had to compare. If he is to attend a busy cooking class in the room, you might remind him of a time he was in a food court and could smell food from multiple different vendors and had to sit amongst lots of other people. Collaboratively consider if this gives him clues about what to expect and how to prepare and manage his brain, body and sensory system through the experience.

It may also be relevant to consider systemic demands as part of the social demands. These include demands placed on Finn by higher order aspects of the social environment. For someone like Finn, a "social demand", like answering a question, isn't just a mental task—it’s a physical stressor that increases heart rate and muscle tension. Other examples include rigidly enforced rules, time constraints or practices which reduce Finn’s autonomy in some way. If Finn wishes to remove his shoes in a carpeted room but an arbitrary rule is enforced and Finn is admonished for this, this may result in his brain and body experiencing threat and escalation. Neurodivergent meltdown or shutdown are likely outcomes. Efforts to eliminate or reduce the impact of systemic demands will likely reduce or eliminate Finn’s brain and body escalation.

3. Emotional Demands
Finally, environments can be audited for their emotional content. Often overlooked or, worse still, ignorantly dismissed as not part of the neurodivergent experience, it is nonetheless very apparent to the parents of neurodivergent children and neurodivergent people themselves that they are very often far more sensitive to the emotions of others and the emotional timbre of many environments than neurotypical people.

Some environments are clearly emotionally charged - like funerals or telling a friend you have broken or lost their favourite toy. Other environments are less obvious. I have heard of several seven or eight year old neurodivergent children who, upon a regular weekly shopping trip to Coles, Woolworths or Aldi, came to the sudden realisation that the meat aisle was, only days earlier, living, breathing animals. Fully clothed in their skin and fur, these animals had quite enjoyed each others’ company and the comfort of a shady tree but were now lying dissected and diced on a plastic tray behind cling wrap with a barcode slapped on the front. Much to the discomfort of their hitherto omnivorous families, each of these neurodivergent children burst into tears and swore off meat for life on the spot citing the needless pain and suffering of animals as motivation. What’s more, many retained a severe reluctance to set foot in the meat aisle again.

This is all to say that the emotional demands of environments can lead to neurodivergent escalation in unexpected ways. Despite this, we can and should collaborate with neurodivergent people to predict and manage these situations to minimise escalation, meltdown and shutdown. The key to doing this effectively is adopting an ecological and embodied approach that favours collaboration and deeply respects the autonomy and human rights of neurodivergent people. De-escalation happens because the body feels safe, not because the brain follows a command.

The Cultural Preference for the Unworkable
None of this is without challenge. Much of what I have shared here flies in the face of accepted wisdom and practice. There is a deeply rooted cultural preference for the thinking-deciding-acting model of psychology. It has been re-stated in so many forms and forums that it has become default, ubiquitous and unquestioned. Our schools and our legal system assumes this. Our culture conflates it with personal responsibility and insists upon its indispensable primacy. Many of our family members and friends do also. Despite its shortcomings and inability to adequately explain and support so much of human behaviour - and especially neurodivergent behaviour -, we cling to it. We do this even when our own personal experiences - like jamming our fingers in drawers - quite clearly negates its validity. However, there is nothing about convenient convention that forces us to continue to betray our own best interests. We need not perpetually preference the familiar but unworkable. Ironically, we can indeed choose to adopt unfamiliar but better ecological and embodied understandings of human behaviour. It is to the benefit of all of us to do just this.

Why “Standard First Aid” Gets It Wrong
The standard medical and behavioral models for understanding neurodivergence are fundamentally flawed because they are preoccupied with what’s going on inside Finn’s head. In doing so, they ignore the reality of the room around him. They also ignore the deep inter-connection between brain, body and senses and instead attempt to delineate artificial boundaries between each. By focusing on changing the person's 'thoughts' or 'choices,' these models place the entire, impossible burden of change—the responsibility for his own distress—onto the neurodivergent individual. If Finn’s problem is the abrasive tag, the bright lights, and the social pressure, no amount of 'calm breathing' or 'good choices' will fix the environment he is biologically struggling to cope within. True, effective Neurodivergent First Aid™ in moments of impending crisis is not about compliance or behavioral modification; it is an act of social justice and environmental design and often one that takes place well in advance. Our first and most important role as supporters must be to engineer a world that offers safety, not threat. We must stop asking why the person cannot cope with the room and start demanding why the room cannot cope with the person. This is why our framework, Neurodivergent First Aid™, operates as a non-clinical, social model intervention.

Conclusion: Change the Ecology, Change the Experience
When we change the ecology, we change the experience. By auditing and adjusting the sensory, social, and systemic demands of an environment, we shift the affordances available to a person's brain, body and sensory system. De-escalation then becomes the natural, inevitable outcome of a body that feels safe. Understanding the environment as it is subjectively experienced is the critical first step in the Neurodivergent First Aid™ framework, moving us beyond the tired, unworkable models of the past. If you are ready to stop placing the burden on the neurodivergent person and start designing environments that promote safety, you can begin today. Visit www.neurodivergentfirstaid.com.au to enroll in the foundational Level 1 course to master this ecological and embodied approach as it applies to neurodivergence.

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